# NZ Cerebral Palsy Register > The New Zealand Cerebral Palsy Register. Te Rēhita a Hōkai Nukurangi Aotearoa Welcome. Tēnā Koutou. Nau mai haere mai. Play Play Play Hōkai Nukurangi – Cerebral Palsy Cerebral (CP) is ## Pages - [News](https://nzcpregister.co.nz/news/) - [Terms & Conditions](https://nzcpregister.co.nz/terms-conditions/) - [Contact](https://nzcpregister.co.nz/contact/) - [Notify Us](https://nzcpregister.co.nz/notify-us/) - [Insights](https://nzcpregister.co.nz/insights/) - [Research](https://nzcpregister.co.nz/research/) - [About Us](https://nzcpregister.co.nz/about-us/) - [Participants](https://nzcpregister.co.nz/participants/) - [home 2](https://nzcpregister.co.nz/home-2/) - [Home](https://nzcpregister.co.nz/) - [Sample Page](https://nzcpregister.co.nz/sample-page/) - [Privacy Policy](https://nzcpregister.co.nz/privacy-policy/) ## Posts - [Neurological Foundation Platform Grant](https://nzcpregister.co.nz/neurological-foundation-platform-grant/) - [Cerebral Palsy Musculoskeletal Health Research project](https://nzcpregister.co.nz/cerebral-palsy-musculoskeletal-health-research-project/) - [Updating How We Understand Cerebral Palsy](https://nzcpregister.co.nz/updating-how-we-understand-cerebral-palsy/) # # Detailed Content ## Pages News NEWS Updating How We Understand Cerebral Palsy 24 April 2026 Updating How We Understand Cerebral Palsy NEWS|24 April 2026 Cerebral palsy is... Read More NEWS Cerebral Palsy Musculoskeletal Health Research project 24 April 2026 Cerebral Palsy Musculoskeletal Health Research project NEWS|24 April 2026 Are you a... Read More NEWS Neurological Foundation Platform Grant 24 April 2026 Neurological Foundation Platform Grant NEWS|24 April 2026 The NZCPR was awarded one... Read More Terms & Conditions Please read the terms and conditions of use set out below carefully before using this website (the "Site"). The use of this Site and any transactions conducted on it is governed by these terms and conditions ("Terms") and the Privacy Statement. Interpretation References to "you", "your" and "yours" are references to the person(s) accessing the Site. References to "we", "us" and "our" are references to the Cerebral Palsy Register. Acknowledgment and Acceptance of Terms The following clauses exclude or limit our legal liability for the Site. You should read them carefully. They will apply only so far as the law permits. You agree that your use of this site shall be governed by all applicable laws of New Zealand. You expressly agree that your use of the site is at your sole risk. The Cerebral Palsy Register, its agents and partners accept no responsibility for any loss, damage, cost or expense incurred by you as a result of any error, omission or misrepresentation on this site. Whilst we have taken reasonable steps to ensure the accuracy, currency, availability and completeness of the information contained on the Site, information is provided in good faith on an "as is", "as available" basis and we do not make any representation or warranty of any kind, whether express or implied, as to the reliability of the information contained on this Site. The information is believed to be accurate and current at the date the information was placed on this Site. We... Contact us Feel free to contact us We will check messages regularly 021 224 2298 Send us an email nzcpregister@adhb. govt. nz Notify us "*" indicates required fields Insights NZ Cerebral Palsy Register Report The New Zealand Cerebral Palsy Register (NZCPR) has produced its first report. The Report is a summary of information from people with CP living in Aotearoa New Zealand. It is a first step towards a better understanding of how many people in New Zealand live with CP and how we can better support positive health outcomes for them. The New Zealand Cerebral Palsy Register Report 2022 NZCPR Regional Data The Report Executive Summary Infographic Publications and research projects Williams SA, Alzaher W, Mackey A, Hogan A, Battin M, Sorhage A, Stott NS. It Should Have Been Given Sooner, and We Should Not Have to Fight for It A Mixed-Methods Study of the Experience of Diagnosis and Early Management of Cerebral Palsy. Journal of Clinical Medicine. 2021; 10(7):1398 READ MORE Williams, S. A. , Mackey, A. , Sorhage, A. , Battin, M. , Wilson, N. , Spittle, A. and Stott, N. S. Clinical practice of health professionals working in early detection for infants with or at risk of cerebral palsy across New Zealand J Paediatr Child Health. 2021 57: 541-547. READ MORE Whitta GT, Paine SJ, Mackey A , Sorhage A , Curtis E , Reid P, Stott NS. Investigating ethnic inequities in cerebral palsy – a pilot study Pending Publication Mackey A, Williams S, Sorhage A, Broadbent J, Battin, M, Stott, NZ. Community services accessed in first five years for children with cerebral palsy. Australian Academy of Cerebral Palsy and Developmental Medicine, 11–14 March... Research The Neurological Foundation Platform Grant The NZCPR was awarded one of the Neurological Foundation’s Platform Grant in November 2025. The funding will be used increase data coverage to 80% of the under-21 population living with CP in NZ; include MRI and genomic data, and support research into neurological, orthopaedic, and rehabilitation outcomes. It will enable NZ-led studies, attract international trials, and improve genetic screening, driving better care and understanding for Kiwis with cerebral palsy. The Investigator Team is led by Professor Susan Stott, Dr Gina O’Grady at Starship Children’s Health; and Professor Justin O’Sullivan at the Liggins Institute at the University of Auckland. Are you interested in using the NZCPR research platform for your research project? The NZCPR is committed to leading and supporting high‑quality research that reflects and responds to the priorities of people with CP. If you are a researcher and are interested in using the NZCPR platform for recruitment or data purposes, we strongly advise that you contact us on 021 224 2298 or nzcpregister@adhb. govt. nz to discuss your project ideas to see if we can support our project. Your project will need NZCPR steering group committee approval as well as local/ national ethics approval (e. g. Health and Disability Ethics Committee ) as well as Te Toka Tumai Auckland Locality Approval before your project can start. Please read the application guidelines and complete and email return the NZCPR Data Request form For more information refer to the Researcher downloads Guidelines NZCPR Access for Researchers... About us The New Zealand Cerebral Palsy Register (NZCPR)/Te Rēhita a Hōkai Nukurangi Aotearoa was established in 2015 and aims to be the source of accurate, consistent, relevant, and high-quality health information to support positive health outcomes for all people in Aotearoa NZ with CP. The NZCPR Team Professor N Susan Stott NZCPR Clinical Lead and Professor at the Department of Surgery, University of Auckland Woroud Alzaher Research Officer Anna Mackey Data Platform Manager Alexandra Sorhage Data Platform Manager nzcpregister@adhb. govt. nz 021 224 2298 We will check messages regularly NZCPR Steering Group Committee In addition to the team members, the Steering Group Committee provides overall direction, oversight, and guidance of the NZCPR’s purpose and goals. Amy Hogan Researcher and Member Support for the Cerebral Palsy Society with lived experience Claire Williams General Manager of the Cerebral Palsy Society Laura Mackay Research Operations Manager at Starship responsible for enabling and supporting high quality research to take place within Starship and across Aotearoa Meghan Sandler Development paediatrician for the Child Development Service in Te Whanganui-a-Tara/Wellington and a senior clinical lecturer at Department of Paediatrics and Child Health, Wellington, University of Otago Mike Bishop CEO Harbour Sport, Chair of Disability Sport Auckland, Board Member of the Laura Fergusson Trust and lived experience Allen Cockfield Orthopaedic Surgeon Christchurch Hospital If you are interested in learning more about how the NZCPR operates, please read our Operating Policy document. VIEW POLICY DOCUMENT NZ Cerebral Palsy Register Report The New Zealand Cerebral Palsy Register (NZCPR) has... Particpants What is Te Rēhita a Hōkai Nukurangi Aotearoa or the NZ Cerebral Palsy Register? The Register collects information about your child and their hōkai nukurangi or cerebral palsy (CP) as well as information about other people with CP in Aotearoa New Zealand. The information that is collected is confidential to the Register. Why do we need the NZ Cerebral Palsy Register? We know that CP is the most common cause of physical disability for children in Aotearoa New Zealand. We currently do not know how many people in Aotearoa New Zealand have CP and how CP affects people’s everyday lives. The more people who join the Register, the more information we will have about people with CP in Aotearoa NZ. This information can help to seek further funding as well as guide and improve health services and future treatments for people with CP. What are the aims of the NZ Cerebral Palsy Register? The aim of the Register is to collect health information about:How many people have CP in Aotearoa New Zealand? How CP affects Māori and how are health outcomes for Māori with CP different from other groups? What can be changed to improve the future for people with CP and their whānau/families? What are the benefits of the NZ Cerebral Palsy Register? The Register is able to combine all the health information on people with CP in Aotearoa NZ, to help health services and disability groups to:Understand what living with CP means for different groups (such as... The New Zealand Cerebral Palsy Register. Te Rēhita a Hōkai Nukurangi Aotearoa Welcome. Tēnā Koutou. Nau mai haere mai. Play Play Play Hōkai Nukurangi - Cerebral Palsy Cerebral (CP) is a lifelong condition that starts early in life and affects how a person moves, holds their posture, and uses their muscles. It is caused by early damage to part of the brain that does not get worse over time, although the effects can change as the person grows and may also change how the person learns, communicates or carries out daily activities (Dan, B et. al. Dev Med Child Neurol. 2026)The New Zealand Cerebral Palsy Register (NZCPR) was established in 2015 with Health and Disability Ethics Committee Approval (13/NTA/130). The NZCPR aims to be the source of accurate, consistent, relevant, and high-quality health information to support positive and equitable health outcomes for all people living with CP in Aotearoa New Zealand. The NZCPR is committed to leading and supporting high quality research that reflects and responds to the priorities of people with cerebral palsy. Find out more about the NZCPR, including our Governance and Operating Policy, under ‘About Us’ Join the NZCPR Join the NZ Cerebral Palsy Register and help us build a stronger, clearer picture of CP across Aotearoa. When more people join, the register is better able to improve everyday health services and support medical research for our CP community. If you are a health professional, parent, caregiver of person with lived experience of CP complete this form... This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this: Hi there! I'm a bike messenger by day, aspiring actor by night, and this is my website. I live in Los Angeles, have a great dog named Jack, and I like piña coladas. (And gettin' caught in the rain. ) ... or something like this: The XYZ Doohickey Company was founded in 1971, and has been providing quality doohickeys to the public ever since. Located in Gotham City, XYZ employs over 2,000 people and does all kinds of awesome things for the Gotham community. As a new WordPress user, you should go to your dashboard to delete this page and create new pages for your content. Have fun! Privacy The Cerebral Palsy Register is committed to safeguarding your privacy online. We are committed to protecting your privacy. This Privacy Policy lets you know how your personal information is processed and used. We do not collect personal information from you unless you voluntarily and knowingly provide it to us. We do not provide or sell information about our members or site visitors to vendors. This Privacy Statement applies to the Cerebral Palsy Register site. The Register is not responsible for the privacy practices, privacy statements, or content of various other web sites linked to ours. Privacy Policy Enforcement If you would like more information about the Register's approach to privacy or wish to raise an issue or concern, please contact us at cpregister@tscnsw. org. au Please specify "Privacy Statement" in the subject line of your e-mail. Information We Gather from You Personal Information We do not collect any personal information from a visitor to our site unless that visitor explicitly and intentionally provides it. If you are simply browsing our site, we do not gather any personal information about you. There is only one way in which you may explicitly and intentionally provide the Register with and consent to our collection of certain personal and health information: Your Decision to Become a Member of the Register If you choose to become a Member of the Register, we will collect your name and contact details for the purpose of issuing a Username and Password. We may also contact you from... ## Posts Neurological Foundation Platform Grant NEWS|24 April 2026 The NZCPR was awarded one of the Neurological Foundation’s Platform Grant in November 2025. The funding will be used increase data coverage to 80% of the under-21 population living with CP in NZ; include MRI and genomic data, and support research into neurological, orthopaedic, and rehabilitation outcomes. It will enable NZ-led studies, attract international trials, and improve genetic screening, driving better care and understanding for Kiwis with cerebral palsy. The Investigator Team is led by Professor Susan Stott, Dr Gina O’Grady at Starship Children’s Health; and Professor Justin O’Sullivan at the Liggins Institute at the University of Auckland. Further Reading Neurological Foundation Newsletter Article  NZCPR Article  Neurological Foundation Programme Grants  Cerebral Palsy Musculoskeletal Health Research project NEWS|24 April 2026 Are you a parent or caregiver for a child aged 4-13 years, classified as GMFCS II, IV or V (click here for more details if you are unsure about which GMFCS level your child is) and live in the Auckland region? You can participate in Cerebral Palsy Musculoskeletal Health Research project. The aim of this study is to improve understanding of how muscle and bone health changes over time and whether earlier identification of these problems can help guide timely treatment and better outcomes for children with CP in the future. This study takes place at the Liggins Institute at the University of Auckland over 4 years, with one appointment each year. You can download the information about the project below or email: Msk. study@auckland. ac. nz Invitation CPMKS Flyer CPMKS Participant Information Sheet CPMKS Participant Information Sheet - Parent Updating How We Understand Cerebral Palsy NEWS|24 April 2026 Cerebral palsy is a broad term used to describe lifelong movement and posture difficulties that begin early in life due to changes or injury to the developing brain. Research over recent years has greatly improved the understanding of CP, including the roles of genetics, inflammation, and brain function. Studies from around the world have also helped build a more complete picture of how CP affects people in different settings. Importantly, people with lived experience of CP have been central in reshaping how CP is described, challenging outdated attitudes and advocating for more inclusive and respectful approaches. There is also growing recognition that adults with CP need better long-term support and services. This work presents a new, updated description of CP, developed collaboratively with people with CP, families, clinicians, researchers, and advocacy groups. It is intended as a starting point to guide future care, research, and policy, and to support ongoing discussion and improvement. Click on the banner below to read the full article.